So, it’s Sunday morning, April 12th. Easter Sunday. I’m sitting at my computer at home, and I open up my folder with the previous blogs I have written for CHD Families of Tucson. I start reading the blog that I wrote in December, “Questions and Answers about Congenital Heart Disease and Cold and Flu Season.”…
Questions and Answers about Congenital Heart Disease and Cold and Flu Season Cold and flu season means runny noses, sore throats, coughing, and achy bodies. Cold and flu season means missed social engagements because we don’t feel well. Cold and flu season means the kids are too sick to go to school, and we…
By: Brian J. Blair, MD, Pediatric Cardiologist How active can my child be? This is a common question that I field as a pediatric cardiologist. It is frightening and daunting to have a child with congenital heart disease. From the day you come home from the hospital with your baby, it is scary and questions…
Par for the Course This year we got super, super lucky in that we were chosen by Canyon’s Crown Restaurant and Pub to be the recipients of their 2019 Charity Golf Tournament. The tourny was hosted at The Arizona National, which might be one of the most breathtaking spots in Pima County. Afterwards, we gathered…
what do we do now? Very few things rip the rug out from underfoot like an unexpected diagnosis. A parent struggling with processing new information, can often feel like they are making life altering decisions while blind. It takes more than a few heartbeats to settle in, become acquainted with the new condition, and settle…
Esme’s parents want other military families to know that “the EFMP program (exceptional family members) may be helpful to ensure you can be stationed in places that have civilian or military care to meet your child’s needs. Moving with a medically fragile child and changing their care team can be very stressful, however, Tricare can…
Heart Month Heart month is sacred in our community. It’s a time where we come together as a family to acknowledge the pain in our journeys. It’s the one week a year where we hold a candle to to darkest corners of what we’ve been through, and ask our friends and family to take a…
As we wrap up our Heart Kid of the Month program for 2018, and prepare to re-launch it in 2019, we wanted to close with a special family. Adelina, along with her parents and her sisters Charlize and Melani, were featured in last year’s community report. Her mama shared a heartfelt letter with our base…
CHD Families of Tucson has been working for the past year to stretch beyond “Tucson” and support CHD kiddos from Southern Arizona in general. We love to connect Heart parents with one another, and watch as little communities pop up across the lower half of the Grand Canyon State. We find ourselves particularly heart-warmed by…
When CHD Families of Tucson was founded, we sought out heart families and found so many that were already active in the community, experienced and ready to meet other folks with shared stories. Emily, our HKOTM, is super special because we got to meet and cheer for her from the very beginning of ~her~ journey….